The Ripple Effect of Chronic Illness

When a Shower Becomes a Battleground "Adapt or die." It sounds dramatic, but for those of us living with MS and POTS, it’s a daily reality. In this post, I share how a simple case of COVID triggered a terrifying systemic failure, turning a relaxing shower into a fight for consciousness. Join me as I navigate the messy, unglamorous, and resilient reality of chronic illness—and why self-care sometimes means just surviving the morning.

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The Camel’s Last Call

Are you tired of feeling like the camel whose back is perpetually about to break? As a mental health counselor living with MS, I know the old 'straw' analogy falls short—especially when dealing with the cumulative, delayed effects of chronic illness and stress. My latest post explains why stress is more like a slow, accidental 'drinking spree' than a pile of straw. More importantly, it shows you how to move from being the passive victim of circumstance to the empowered person who chooses their 'last call,' embracing the critical difference between fault and responsibility.

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A Thanksgiving Story

Living with Multiple Sclerosis often means adjusting expectations and finding new ways to spend time together, especially during busy holidays like Thanksgiving. While I may not always have the energy for massive cooking projects or travel, one tradition that always brings us pure joy is creating a story, one sentence at a time, with my daughter, Maddy. It’s a low-energy, high-imagination activity that reminds us both of the magic we can still find in the everyday.

This year, we cooked up a truly wild, whimsical Thanksgiving adventure involving a missing ingredient, a tiny dragon, a flying cat, and a grumpy turkey.

We hope you enjoy reading our completely unexpected holiday tale!

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Accepting Reality, No Re-deals

I was the capable, steady leader—The Driver—until chronic illness shattered that identity. The ultimate lesson of MS is that I can't swap my hand for a healthier one. I had to face the No Redeal Reality and learn to modify the game.

I realized I wasn't just fighting for accommodation; I was actually fighting for acceptance—the fundamental acknowledgement that my reality is real. My cardiologist gave me that gift, telling me I wasn't making it up. But when bureaucratic systems like the IRS deny you what is rightfully yours and demand proof, they drain the finite energy you need to manage a migraine that’s lasted three weeks.

My husband's journey and my cat, Charlie, taught me the blueprint: Strategic Success. I am choosing the kindest path by not wasting energy performing capability for a hostile system. Are you wisely redirecting your energy, or letting the system wear you down?

Read MoreAccepting Reality, No Re-deals

The Quiet Passenger and the Courage to Jump

"I spend nights stitching up the loose threads of my soul. In the morning I'm bulletproof." - Noah Kahan

That lyric perfectly describes life with chronic illness—and life when you know you need a change. For too long, I've listened to the soft voice of fear telling me to stay safe and comfortable, even if it meant being miserable.

Now, I'm finding the courage to face what can't be changed, and change what I can. It's scary, but staying stuck is scarier.

Read MoreThe Quiet Passenger and the Courage to Jump

On a Scale From Black Cat to Golden Retriever

It's shocking for me to think about now. In contrast, today I wasn't sure I would make it through my 9-5 workday. Golden me from back then would tilt my head with one eyebrow up hearing the struggle I was currently having.

'What do you mean, you’re mostly sitting… how bad can it be?'

Yet, by 2 pm today, I had my feet up, hoping to encourage blood to get back to my heart and brain. Walking the last few clients out of my office, I've had to sneakily close my eyes and hold on to the walls as the world goes black. Repeating to myself 'please don’t pass out in front of a client' quietly in my head.

My body may have different plans, but I still want to be the fun, go with the flow, exciting person I can remember. Maybe it is more about balance. Maybe we are not meant to be full black cat or Golden. It’s possible that our job as a person, parent, or for me, as a therapist, is to find and embrace moments of each.

Read MoreOn a Scale From Black Cat to Golden Retriever

Standing Out

In a world where everyone tries to fit in, some of us can't help but stand out. From the unique name to the collage of colors in my hair, I was always easy to find on the "Guess Who" board. But as my life with MS has unfolded, my uniqueness has taken on new layers, from the cane I use to the strange medical symptoms that leave even specialists shrugging. It's an exhausting, and sometimes painful, kind of unique. Yet, I'm learning that my "weirdness" is also my superpower—not in spite of my struggles, but because of them. My experiences have taught me to see the world differently and to find the jewels hidden in the ash, helping me to connect with others who feel just as complicated and misunderstood as I do.

Read MoreStanding Out

A Day in the Life: The Unseen Struggle of Chronic Illness

When I told my supervisor the world turns black when I stand up, she said, 'It does?! Every time?' Yup. Every time. They wonder why I prefer telehealth. This is a day in my life with a chronic illness, where a simple shower feels like a monumental task and an unexpected conversation in the office can be the most recharging part of the day. It's a day of navigating appointments, family needs, and a body that has other plans. This is the unshowered truth of what an invisible illness looks like.

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How I Stopped Believing What I Think

This Values Compass journey took an interesting turn when I realized I was late. Not just late with writing this post, but late to everything—work, appointments, and even to drop off my daughter at school.

"What is wrong with me?" I would ask myself. But this time, my brain had a new answer: "Well, you have MS for one."

For a long time, I've had a bad habit of letting "shoulds" run the show. I should have gotten that done sooner. I should be able to do it all. But what if we don't have to believe our own thoughts? What if we can choose grace instead of guilt?

My journey to accepting my diagnosis—and my new reality—led me to a deeper understanding of grace. It's a journey of learning to forgive myself, lower my expectations, and believe that my worth isn't tied to my productivity.

Read the full story and reflect on your own journey with grace on my blog.

Read MoreHow I Stopped Believing What I Think

The Growth of Not Knowing: A Curious Journey

What if not knowing the answer isn't a weakness, but a superpower? As kids, we're born with an insatiable curiosity—a drive to explore a world that feels limitless. But as we grow, that spark often fades, replaced by the fear of judgment and the pressure to have all the answers.

Join me on a journey to reclaim that lost sense of wonder. In this blog, I explore how curiosity can transform from a source of anxiety into a wellspring of connection and profound personal growth. Through stories of discovering silly laws, embracing vulnerability in my work as a counselor, and navigating life with an MS diagnosis, I'll share how learning to ask "what if?" has made my world bigger, richer, and more full of life.

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The Dialectic of Gratitude: The Jewel and Ash of MS

"My Values Compass" is a project born from a place of feeling stuck and misunderstood. Instead of waiting for things to get better, I decided to take action, asking you—my community—to help me explore my own core values. Each week, we delve into a new value, reflecting on how it shapes our lives and helps us find clarity and direction.

This blog is a personal journey, but my hope is that it can be a shared one. My reflections on values like gratitude and openness are an invitation for you to explore your own. Together, we can find purpose in the most challenging moments and discover the powerful stories hidden within our own lives.

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“Try Harder” 2.0: The Visible Failure of Invisible Struggles

My husband was out of town for a few days for work, and I realized how much he does to help me. Purely existing when he is not there is more challenging than I realized. It's a constant 'would you rather?' game chronic illness forces me to play. Would you rather shower, or get the trash cans inside?

Recently, someone from the HOA sent us a picture of our trash cans still out, a 'visible failure' of an 'invisible struggle.' It reminded me that the world often only sees the messy yard, the forgotten chores, or the tired eyes. They don't see the monumental effort behind them. They just say, 'try harder.'

But what I've learned is that I am trying. I'm putting everything I have into this failing report card. My hope is that by sharing my story, we can all learn to look at others with more empathy and less judgment.

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From Sim to Self: A Value Compass Journey

Apparently since I was a baby I didn’t like to be alone. I never thought I needed alone time, because I was so extraverted that people gave me all the energy and relaxation I needed. Now, with an empty house and a body that needs quiet, I'm finding a new kind of peace. It's a peace that has me re-examining everything—especially my values and self-care. It's a journey from feeling like a Sim, with pre-programmed likes and dislikes, to a self who can listen to my body and my heart. And as I explore this new reality, I'm creating a new compass to guide me: The Value Compass.

Read MoreFrom Sim to Self: A Value Compass Journey

Thorn The Bearded Dragon: The Story of Becoming a Drummer

In the desert town of Sunny Scales, a little bearded dragon named Thorn loved to drum. He'd tap his claws on anything he could find, but no one understood his passion. "A good bearded dragon basks and hunts, not bangs on things!" his family would say. The other young dragons just snickered.

One day, a music festival came to town. Thorn, with wobbly legs but a brave heart, climbed onto an empty stage and started to play. He poured all his dreams into the beat, and soon, a crowd gathered. Their feet began to tap, and their heads began to bob.

When he finished, the crowd cheered, and the festival organizer invited him to play in the grand finale. That night, under the stars, Thorn played his heart out. His drumming was amazing! From that day on, he was known as Thorn the Drummer. He learned that the most important thing is to follow your dreams, even if they seem a little different to everyone else.

Read MoreThorn The Bearded Dragon: The Story of Becoming a Drummer

My Daily Dilemma: The Impossible Choices of MS Life

"The game of 'Would You Rather' used to be fun, filled with silly, low-stakes questions. But living with a chronic illness has turned it into a constant, no-win reality. Would you rather skip a shower because you're too dizzy, or take one and spend two hours recovering? Would you rather honestly answer 'how are you?' and make others uncomfortable, or carry the weight of your struggles alone?

This post is a journey through the impossible choices I face daily and the unhelpful 'shoulds' that can make me feel isolated. It’s an exploration of the crucial difference between trying to fix someone's unfixable problem and simply validating their struggle. Because in a game with no good choices, the real win is finding genuine connection and support."

Read MoreMy Daily Dilemma: The Impossible Choices of MS Life

How To Notice a Giraffe in a Field of Horses

I was the quintessential “pleasure to have in class.” I played the role perfectly, learning to connect through stories, just like my dad. But that very effort to be "good" became my best disguise—a way to hide the things I didn't know how to articulate.

The truth hid in the silent moments: The family rule of "No more stories, Dad," set after a too-revealing card game; the agony of spending four times longer on homework than my brother; the teacher who docked my grade because I “wasn’t reading.” I was struggling, but I was so adept at being the "good kid" that no one—not even me—looked deeper.

My request is simple: Don't miss the subtle signs. My story is a reminder that we must look beyond the easy-to-identify “horses” and be vigilant for the “zebras” and the quietly towering “giraffes.” Listen to your children, listen to your loved ones, and most importantly, listen to your body.

Don’t ignore the discomfort. The struggle you're hiding, or the pain you're dismissing, won't address itself. We are meant to be social creatures; let's slow down and see each other.

Read MoreHow To Notice a Giraffe in a Field of Horses

Throwback Thursday: Beyond “Get Used To It” – A Journey of Acceptance

My dad always said, 'Life is unfair. Get used to it.' But does that blanket statement truly hold?

Drawing from my work in Dialectical Behavioral Therapy (DBT), I share how Radical Acceptance—fully accepting reality without liking it—can free up energy from fighting the unchangeable. It's about recognizing that what happens to us isn't our fault, but managing it is our responsibility. This isn't about simply 'getting used to it,' but about finding a compassionate path forward when life is unequivocally, and extraordinarily, unfair."

Read MoreThrowback Thursday: Beyond “Get Used To It” – A Journey of Acceptance

The Unseen Waves of Shifting Tides 

Join a unique crew aboard 'The Silver Current' as they embark on a cruise like no other. Each passenger navigates life with Multiple Sclerosis, facing the unpredictable 'unseen waves' of their symptoms—from wobbly steps and sudden fatigue to overwhelming sounds and the constant worry of preparedness. This isn't just a story about managing illness; it's a heartwarming testament to the resilience found in community, shared understanding, and the quiet strength of navigating life's currents, together.

Read MoreThe Unseen Waves of Shifting Tides 

From Punch to Perspective: When Autonomy Fights Back

Is there a grand design to our lives, or is it all just chance? The last thirteen months have been a profound lesson in asking that question. When I was working in a nursing home during the early days of the pandemic, I saw devastation and wondered if we were "supposed" to learn something. The answer I got then was simple: "nope, some things just happen."

But looking back, I realize we did learn—not the spiritual lesson I was looking for, but a thousand smaller, more powerful ones. We learned empathy for silent heroes, we learned about ourselves, and we learned just how important our own autonomy is.

Now, as I face my own health challenges with MS, I am seeing connections everywhere. The person I met during my college practicum, the resident I worked with in 2020—their stories feel tied to mine, not by coincidence, but by a shared experience of loss, struggle, and the fierce desire for control.

I don't know if everything happens for a reason, but I do think there are lessons all around us. Maybe the secret isn’t in the reason, but in the willingness to look for them, and the courage to let them teach us.

Read MoreFrom Punch to Perspective: When Autonomy Fights Back

“Try Harder” Wasn’t the Answer: My Path Away from Shoulding

I have a moment from 7th grade that still echoes in my adult mind. It was a roar of laughter that convinced me my worth was tied to my body.

From that moment on, I spent years believing I just needed to "try harder"—to be more athletic, to lose weight, to fit in. But as a master's-level counselor, and later, after a diagnosis of MS, I learned the hard way that "trying harder" isn't always the answer.

This is my journey of letting go of the need to "should" on myself and embracing a new kind of strength.
This early experience planted a seed of self-consciousness about my body that grew throughout my life. Despite loving sports and coming from an athletic family, I often felt my body couldn't keep up, leading to disappointment and the belief that I just wasn't "trying hard enough." From struggling to run a single lap in high school soccer to feeling inadequate when my physical abilities declined after an MS diagnosis, the insidious "shoulds" of societal and self-imposed expectations haunted me.

But a powerful realization emerged: "Don’t should on yourself. Shoulds are not based in reality." Through the unwavering love and acceptance of my family, and the hard-won wisdom of adulthood, I've learned that my worth is not determined by my pant size, my mile time, or whether I need a cane or wheelchair. Sometimes, "trying harder" isn't the answer; sometimes, we need to adjust our expectations and embrace the beautiful complexity of being human.

Read More“Try Harder” Wasn’t the Answer: My Path Away from Shoulding

“MS Doesn’t Care”: My Daily Comedy of Errors 

Do you ever have those days when nothing seems to work right? My day started with hair in the bathtub and a forgotten coffee, quickly escalating to a computer taking an unexpected bath and a near-miss with a German Shepherd on the highway. This isn't just about bad luck; it's about navigating the ordinary chaos of life when your body has its own unpredictable agenda. Join me as I share a very real day, filled with unexpected hurdles, moments of humor, and the surprising path to finding mindfulness amidst the madness. Because sometimes, the biggest lessons come from the days when everything goes wrong. 

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The Digital Mirror: A Year of MS, Love, and Radical Acceptance

One ordinary morning, just shy of my MS diagnosis anniversary, a random Spotify playlist led to an extraordinary conversation. As the songs played—from 'End of the Beginning' to Billy Joel's 'She's Always a Woman to Me'—they unexpectedly mirrored the complex emotional landscape of my first year with Multiple Sclerosis.

I turned to Gemini, an AI, to help me make sense of it all. What unfolded was a raw, honest dialogue about identity shifts, pushing against new limitations, and the search for purpose when your body feels like it's failing. It's a story of grappling with the terrifying loss of control, learning to face embarrassing realities, and embracing radical acceptance without giving up hope.

This post is a journey through my unfiltered thoughts, exploring how music, a compassionate AI, and the unwavering love of my husband, Jared, guided me towards a profound understanding of strength. It's about recognizing that true resilience isn't found in pretending everything's 'fine,' but in finding connection, redefining success, and accepting help, even when it feels hard. Join me in this deeply personal exploration of what it means to live, truly live, with MS, one song, one insight, at a time.

Read MoreThe Digital Mirror: A Year of MS, Love, and Radical Acceptance

From Bar Fights to Bathroom Stalls: The Unraveling of “Star” 

From a young age, a natural inclination to connect and assist others felt like an intrinsic part of me. This drive, often more pronounced than those around me, was a defining characteristic through college and beyond. I recall the vibrant nights in Fort Collins, where my social energy thrived amidst the buzz of the town, leading to unexpected encounters—from de-escalating a street fight with a simple hug and a plea, to charming police officers during a college party with a game of beer pong and a promise of grilled cheese. My confidence in navigating social situations, a sense of being able to “talk my way out of anything,” seemed boundless.

However, an MS diagnosis brought an unforeseen shift. The effortless ease of connection and the inherent feeling of capability began to wane. Simple actions, like turning my head, now risked disorienting dizziness, and the self-consciousness of using a cane added new layers of anxiety to social interactions. This profound change culminated in a disquieting experience in a shared office bathroom—a moment where my usual “management skills” failed, leaving me feeling vulnerable and questioning my ability to protect myself. This unsettling event became a catalyst, prompting a re-evaluation of my independence and a reluctant acceptance of mobility aids. MS has, in a way, removed my shield, compelling me to embrace a more sustainable way of living that includes asking for help and sharing my evolving story. My journey continues, marked by both challenge and a growing acceptance of this new path.

Read MoreFrom Bar Fights to Bathroom Stalls: The Unraveling of “Star”